22q11 Ireland Conference 2018

Please register for attendance at the 22q11 Ireland Conference 2018

October 6th, 2018 Trinity College Dublin

INFORMATION ON THE 22q11 Ireland Conference 2018

WHERE

This conference will be held in Trinity College, Dublin on Saturday the 6th of October 2018.

AGENDA

22q11 Ireland Conference DRAFT Programme

9.15 – 9.45 Registration
9.45-10.00 Welcome from Anne Lawlor, 22q11 Ireland
10.00-10.20 YEEP Group Presentation – Facilitator Lorna Kerin
10.20-11.10 Donna Cutler-Landsman – Developing Skills in the Younger Student
11.10-11.20 Q&A

11.20-11.40 Coffee Break

11.40-12.30 Mental Health in Primary School. Prof Fiona McNicholas
12.30-12.40 Q & A
12.40-13.30 Donna Cutler-Landsman – Strategies for School Success in Primary School

13.30-14.30 LUNCH

14.30-15.20 Donna Cutler Landsman – Creating A Future Plan; Post-Primary & Transition to Adulthood
15.20-16.20 Dr. Alison Doyle - Life after School; Where am I going and how do I get there?
16.20-16.30 Q & A (Donna and Alison)
16.30-16-40 (Sibshop Snapshot ) TBC

16:40 - 17:00 Reflection & Wrap Up

SPEAKERS

Donna Cutler-Landsman

Children with complex genetic syndromes or complicated medical conditions often learn at their own pace and typically face learning challenges. As an experienced educator and a parent with a grown child with 22q11.2, Donna expertise is in assisting both parents and schools navigate the difficult task of programming for children with complicated learning and medical needs. Donna has provided special education advocacy for families dealing with the 22q11.2 deletion, autism, fragile x, selective mutism, and mental health needs.

Prof. Fiona McNicholas

Prof Fiona McNicholas is a Consultant in Child and Adolescent Psychiatry in Lucena Clinic, Rathgar and Our Lady's Hospital for Sick Children, Crumlin. She trained in Psychiatry in Guys Hospital, and in Child Psychiatry in Great Ormond Street Hospital, London. She carried out a research fellowship in Stanford University, CA in 1999-2001 and returned as visiting professor in 2013/2014. She was Assistant Professor at Columbia University, NY prior to her appointment as chair in UCD in 2001.

Dr. Alison Doyle

Dr. Alison Doyle is a researcher, educational psychologist and owner of Caerus Education, an independent consultancy in Dublin, specialising in the management of educational transitions for children and young people with special educational needs and disabilities. Alison also carries out commissioned research on behalf of national organisations, and regularly lectures to Higher Education Institutions in Ireland, and the UK. Alison began her career in Liverpool in 1982, teaching children with profound intellectual and physical disabilities, and continued to work as a teacher and school Principal.

ACCOMODATION

No pre-arranged accomodation rates are available. However, the conference is city centre based and a wide range of accomodation options are available locally.

COST

Attendance at the conference is FREE, however please register so we are aware of numbers prior to the conference

SOCIAL NIGHT OUT​

There will also be a social night out on the Saturday the 6th of October. The cost is approximately €28 per person and will be payable on the night. Venue: Farm Restaurant, 3 Dawson Street, Dublin 2

FAQ

Will there be childcare on site?

No, we are not able to facilitate any childcare or any form of adult supervision at the conference and neither the event nor the venue is suitable for children under 12. Parents also need to be mindful that potentially sensitive topics will be discussed.

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Who should go to this conference?

This conference will allow families, professionals and anyone interested in the topic of 22q11DS to access the latest research and expert opinions. It's an amazing opportunity for anyone to attend. (22q11 Ireland's committee would highly recommend that every family who can attend should attend). This is also a fantastic opportunity for teachers and SNA to learn more about how 22q impacts on learning, and strategies to aid school success

I'd like to help, what can I do?

You can help us by donating, holding a fundraiser, volunteering with the organisation of the event or volunteering on the day

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