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Down syndrome a brief overview - the role of the Nurse Specialist

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Lecture Theatre 2.57, School of Nursing and Midwifery, Trinity College Dublin

24 D'Olier Street

D02 T283 Dublin 2

Ireland

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Down syndrome a brief overview - the role of the Nurse Specialist

a public lecture by Fiona Mc Grane, Clinical Nurse Manager II / Research Nurse for children with Down syndrome, Tallaght Hospital

The lecture will begin with a brief overview of Down syndrome the genetical factors and the incidence of the condition in Ireland. The identifiable features and the health issues associated will be descibed. The role of the nurse specialist for children with Down syndrome will be explained in greater detail including her role in:

  • Supporting children

  • Supporting parents

  • Community Liaison

  • Clinical decision making and guidance

  • Research

  • Education

Fiona Mc Grane is the Clinical Nurse Manager II / Research Nurse for children with Down syndrome. Her post is based within the discipline of Paediatrics and Child Health in the Trinity Centre, Tallaght Hospital. She is a graduate of Trinity College Dublin and is registered within the disciplines of sick children's and intellectual disability nursing.
Fiona has worked for many years within the area of disability, caring for children and adults in community, residential and hospital environment. She is currently the only nurse in the country who is employed to specialise within the area of Down syndrome and she provides a nationwide service for children and families from birth to 18 years. She currently has 450 children and their families that attend Tallaght Hospital along with hundreds of calls annually from families across the country.
Fiona plays an active role in clinical decision making and ensuring that children have all their medical and developmental needs addressed. Fiona manages a nurse led clinic for children with Down syndrome, the first of its kind in the country, alongside the paediatric medical team in Tallaght Hospital. She is also a member of the steering group for the National Register for children with Down syndrome and also the Down syndrome Medical Interest Group UK and Ireland.


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Lecture Theatre 2.57, School of Nursing and Midwifery, Trinity College Dublin

24 D'Olier Street

D02 T283 Dublin 2

Ireland

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