Get-together with Myotonic Dystrophy Support Group UK

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Get-together with Myotonic Dystrophy Support Group UK

An opportunity to meet with Michael Walker from Myotonic Dystrophy Support Group, UK

When and where

Date and time

Location

Muscular Dystrophy Ireland 75 Lucan Road Chapelizod D20 DR77 Dublin Ireland

Map and directions

How to get there

About this event

Muscular Dystrophy Ireland and Myotonic Dystrophy Support Group UK (MDSG) are delighted to invite you to attend a get-together with Michael Walker from MDSG on Tuesday 13 September. At the get-together you will have an opportunity to hear about the work of MDSG and ask Michael questions. We hope you can join us!

Where

You can attend online or in-person at MDI Offices, Chapelizod, Dublin 20.

Event details:

12.00 Light lunch provided at MDI Offices

13.00 - 15.00

  • Welcome and introductions
  • Michael talks a little about MDSG
  • Questions and answers.

About Myotonic Dystrophy Support Group, UK

MDSG was the first myotonic dystrophy condition-specific support group in the world. It aims to support people, families and carers affected by the condition. With almost 1,000 families on the database, MDSG supports them with regular newsletters, 17 different brochures, an alert card, an annual conference and a number of local area get-togethers.

The group was founded in 1989 by Mrs Margaret Bowler in Nottingham, England. Margaret started the support group following an eventual diagnosis of the condition of her husband and Peter, one of her sons. She was keen to find other families with the condition and share experiences. So began the birth of MDSG.

Michael Walker is a Trustee and Treasurer of the group. He joined in 1993, following the birth of his twin boys when his wife and one of the boys were diagnosed with myotonic dystrophy. MDSG is run by a volunteer board of six trustees and is based in an office in Nottingham with one part-time office worker.

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