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Glenlo Abbey Hotel

H91 XD8K Bushypark


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‘Shaping the Vision of Living Independently with Dementia’

This year's event will bring together the experiences of our neighbouring countries Scotland, Wales, England and Northern Ireland. We will explore what works well and what we can learn from one another by collaboration and sharing of knowledge.

As our nearest neighbours the challenges will be very similar i.e. rural isolation, social isolation, lack of services, duplication of services, lack of information, so hopefully we can compare and learn from one another.

The day brings together those who are living with a dementia diagnosis, their supporters/carers, family members, wider communities, medical professionals, policy makers, business organisations and the services, a full programme will be published shortly but to give you a flavour of what is planned.

Registeration is 8.30am-9.30am

Confirmed participants to date:

Scotland - Agnes Houston MBE- Agnes was diagnosed with Early Onset Alzheimer Dementia in 2006 at the age of 57. Agnes has completed incredible work on the sensory challenges faced by those with a diagnosis.

Scotland - Nancy McAdam - Nancy was diagnosed with vascular dementia in September 2003 at the age of 58. Nancy lives on a remote croft, 27 miles from Inverness and has been active in building awareness and setting up supports since 2004. Nancy was a founder member of the Inverness Dementia Memory Group – the first Highland Involvement Group of People with a diagnosis of dementia.

Wales - Chris Roberts/Jayne Goodrick - Chris was diagnosed with mixed dementia in 2012 at the young age of 50. Chris is a board member of Dementia Alliance International, Vice Chair of the European Working Group of People with and a member of the 3 Nations Dementia Working Group. Jayne and Chris talk about family struggles, highs and lows of living with dementia

Northern Ireland – Dementia Northern Ireland

Alzheimer's Society Northern Ireland - Danny Brown

Ireland - Helen Rochford Brennan - Helen was diagnosed with early onset Alzheimer's disease in 2012. Helen is an Advocate and Global Dementia Ambassador she is a strong voice in the battle to obtain Human Rights for those living with Dementia not just in Ireland but globally. Helen is Chair of the European Working Group of People with Dementia and Board member of Alzheimer Europe.

England/Scotland - Prof Anthea Innes - Anthea is a social scientist who has specialised in dementia research for the last 20 years. Her research interests focus on hearing the views and experiences of people living with dementia are confirmed participants to date; their care partners and paid care workers. Her particular areas of interest include rurality; technology; improving care and support for those living with dementia; creativity and the arts.

Alzheimer Europe - Dr Dianne Gove – Dianne was awarded a PhD in 2013 for her research exploring GPs' perceptions of dementia and how these relate to stigma and timely diagnosis. She has worked on a wide range of topics covering care, legislation, continence problems, advance directives and social support. She chairs AE’s ethics working groups which have produced reports on assistive technology, dementia research, the portrayal of dementia, restrictions of freedom and ethical dilemmas.

Ireland - Ann Twomey - Ann, a former Carer for her late husband, was Co-Founder of the K-CoRD project (Kinsale Community Response to Dementia) one of 4 Pilot Sites in the Genio Dementia Programme 2012-2015 and funded by the Atlantic Philanthropies. Ann represented K-CoRD a partner in COLLAGE (Collaboration on Ageing) Ireland’s 3 Star Reference Site in The European Innovation Partnership on Active and Healthy Ageing (EIP AHA) in Brussels.Ann is a member of the Advocates Advisory Board of the Dementia-Neurodegeneration Network Ireland (DNNI) at the Mercer Institute, St James Hospital. Ann is a member of The Alzheimer Society of Ireland’s Dementia Carers Campaign Network (DCCN).

Ireland - Maria Carroll -

Ireland - Dr Suzanne Timmons - Suzanne is a geriatrician in Cork, Senior Lecturer in the Centre for Gerontology and Rehabilitation, UCC, and recently appointed Clinical Lead for the National Dementia Office. She has a special interest in health service research and quality improvement in the area of dementia and delirium care, especially in acute hospitals. She co-led the Irish and Northern Ireland National Audits of Dementia, and the Cork Integrated Dementia care Across Settings (Cork-IDEAS) quality improvement project, developing an integrated dementia care pathway for a local hospital. Dr. Timmons leads research programmes in delirium, palliative care in dementia and Parkinson’s disease, and the appropriate prescribing of antipsychotics in dementia. On behalf of the National Dementia Office, she is leading the development of a pathway for people with dementia in acute hospitals, and is co-leading the development of national clinical guidelines for psychotropic medication use in people with dementia.

Ireland - Kieran Walsh - Kieran is a PhD scholar and pharmacist based in University College Cork. For his thesis, Kieran is exploring the use of antipsychotics in nursing home residents with dementia.

Ireland - Prof Suzanne Cahill - Suzanne is based in Trinity College and her current research interests include human rights and dementia, GPs and dementia, quality of life and Alzheimer's disease, formal and informal caregiving and architectural design and dementia. Suzanne has just published her book on Dementia and Human Rights.

Ireland - Deirdre Shanagher - Deirdre is currently working with the Irish Hospice Foundation as a Development Officer. She is a registered general nurse who has worked with older people as a nurse and nurse manager. Deirdre obtained a BSc (Cur) general nursing in 2006, an MSc Gerontological nursing in 2011 and European Certificate in Palliative Dementia Care in 2014. Her work with the Irish Hospice Foundation centres on advance care planning, the Palliative Care for All and Primary Palliative Care Programmes as well as supporting other projects linked to the healthcare team.

Ireland - Prof Eamon O'Shea – Eamon is a Personal Professor in the School of Business & Economics and was inaugural Director of the Irish Centre for Social Gerontology (ICSG) at the National University of Ireland, Galway. His current research is focused on: the economics of dementia, health care evaluation and rural ageing.

Also involved and participating on the day are Pat McLoughlin CEO Alzheimer Society of Ireland, Pat Holmes CEO Western Alzheimer, All Ireland Institute Hospice Palliative Care, Dr Sabina Fahy Consultant Psychiatrist and Dr Patricia Carney NUIG.


Natasha Walker is a communication consultant and has been living in and working from Heidelberg, Germany, for 23 years, where she is married and has two children. After her degree in English Literature and Modern Languages at Oxford University, Natasha discovered her knack for facilitating complex change and strategy projects for corporations, governments and civil society. She is also specialised in supporting teams going global. Her work makes decisions more effective and changes the way people work together. An avid reader and musician, Natasha has recently picked up her pen to rediscover poetry. Natasha is an expert for communication, focusing on facilitation, participation and designing complex dialogue processes. Her work results in effective strategy implementation, sustainable change and organisational development. Natasha founded her own consultancy company in January 2010: NWA.

Josephine Lally has worked in Community and Rural Development at both local and national levels. Some of her experience includes working as Regional Policy Co-ordinator of the Community Development Support Programme in the Western Region and as part of EU EMPLOYMENT NOW Technical Support Unit (National Women’s Council) providing operational, technical and policy development support to 104 nationally diverse projects, focusing on piloting innovative proactive approaches to women’s problems of exclusion and inequality in the Labour market. In recent times, her research, training and evaluation experience has focused on equality, disability, poverty and social exclusion. A core ethos of her approach is facilitating and supporting groups and individuals she works with to organise and voice their issues and concerns for themselves.

Stands on the day:


Independent Living Ireland

FORUM Connemara

Health Care Medical

Dementia Ireland

UCC Alzheimer Society

Alzheimer Society of Ireland -ASI

Western Alzheimer

Dementia Mayo

All Ireland Institute of Hospice Palliative Care -AIIHPC

Irish Hospice Foundation

ConnemaraTherapeutic Riding


ICSG (Irish Centre for Social Gerontology)

PPI (Public and Patient Involvement in Research)

Sponsors to date

Genomics Medicine Ireland Limited, St Anthony’s & Claddagh Credit Union, Ashford Castle, FORUM Connemara, Electronic Concepts Europe LTD., Corrib Cruises, Connemara Lake Hotel, Independent Living Ireland, Seapoint Medical Clinic, Galway Clinic, Powers Thatch, Jackson & Co Accountants and Statutory Auditors, Community Works, MEMORIDE, D M O’Connor & Co. Solicitors, University of Notre Dame Dublin Global Gateway, Railway Lodge Country Home,

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H91 XD8K Bushypark


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