GRDO - Rare Diseases Ireland

GRDO - Rare Diseases Ireland - 

• Voices and promote views of the member organisations on issues of common concern.

• Increases public awareness of genetic and other rare diseases using a single strong.

• Promotes further development of genetic services in Ireland.

• Advocates for the availability of adequate care services in Ireland for people living with genetic and rare diseases.

• Facilitates the exchange of information between member organisations that represent people living with genetic and rare diseases.

• Establishes relationships with geneticists and other relevant specialists nationally and internationally to help Rare Diseases Ireland achieve its aims and objectives.

• Collaborates with national and international stakeholders on policy and regulatory issues in the area of genetic and rare diseases.