PKU Association of Ireland

The PKU Association of Ireland is a voluntary patient association, we exist to support those with PKU and their families. The cost of holding meetings and events, producing information leaflets, developing and hosting a website, and relevant expenses etc etc are all met by individuals paying for it themselves and donations. We do not receive any government grants.

Our purpose is to help and support those affected by PKU, and other metabolic disorders that can be managed just like PKU. We share tips, advice, stories, and recipes and generally support each other as we learn about this rare condition, helping to make it as easy to manage as possible.

Our other goal is to strive continuously for the best possible care for people with PKU. This includes raising awareness of the condition and calling for more proactive and holistic care throughout childhood and into adulthood.

The PKU Association of Ireland is a voluntary patient association, we exist to support those with PKU and their families. The cost of holding meetings and events, producing information leaflets, developing and hosting a website, and relevant expenses etc etc are all met by individuals paying for it themselves and donations. We do not receive any government grants.

Our purpose is to help and support those affected by PKU, and other metabolic disorders that can be managed just like PKU. We share tips, advice, stories, and recipes and generally support each other as we learn about this rare condition, helping to make it as easy to manage as possible.

Our other goal is to strive continuously for the best possible care for people with PKU. This includes raising awareness of the condition and calling for more proactive and holistic care throughout childhood and into adulthood.

Events

Sorry, there are no upcoming events