We are a group of family, friends and local community members fundraising on behalf of Rose O Flaherty, Ballymacelligott, Tralee, County Kerry.

Rose is only 4 years old and was diagnosed with a rare and serious genetic neuromuscular condition called Spinal Muscular Atrophy (SMA) Type 1. Currently there is no cure for SMA however, there are treatments available to help manage symptoms and reduce discomfort.

Rose is a gorgeous determined girl who is defying medical odds. She has already learned to stand with aid for 10-15 seconds thanks to intensive ongoing physiotheraphy.

Her parents Karen @ Thomas dream that one day Rose will walk(aided) and be able to do simple things that we take for granted.

There is a treatment plan in place for Rose but we need your help.