Minimum Data Set and Outcome measures for the National Dementia Register

Workshop objective

As part of the National Dementia Strategy, DCU is developing a model for a National Dementia Registry, funded by Dormant Accounts through the Department of Health and commissioned by the National Dementia Office.

Despite a growth in dementia registry numbers (30+), no international standard has emerged. The DCU project team have built relationships with key dementia registries in other countries who have a willingness to share experiences and support our learning and development of a model for Ireland.

This workshop has two primary objectives:

1) To walk through the components of a dementia registry data set in order to identify mandatory data fields.

2) To discuss how a dementia registry can drive change and establish outcome measures to track which will add value.

Join us to contribute to discussions and assist in the co-design of the model for the National Dementia registry.