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University College Dublin

George Moore Auditorium

O'Brien Science Centre

Belfield

Ireland

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The primary objective of Rare Disease Day is to raise awareness among healthcare professionals, policymakers and the general public about the rare disease and its impact on patients and their families lives. The Rare Disease Day 2018 theme is " Research", and there has been significant progress in rare disease research and this day will explore the rare disease research progress at the national and international level. There will be panel conversation based on "Innovative Approaches to Rare Diseases" and "Holistic Care in Rare Diseases".

Rare Disease Day Organising Committee:

  • Dr Suja Somanadhan, Assistant Professor of Children’s Nursing, UCD School of Nursing Midwifery and Health Systems

  • Prof Thilo Kroll, Prof of Health Systems Management, UCD School of Nursing Midwifery and Health Systems

  • Dr Sean Ennis, Director UCD Academic Centre on Rare Diseases, UCD Medicine

  • Dr Atif Awan, Consultant, Temple Street Children's University Hospital

  • Avril Daly, CEO, Retina International

  • Dr Avril Keenan, CEO, MRCG

  • Anne Lawlor, 22q11D

  • AnneMarie Dowd, Cystinosis Ireland


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Date and Time

Location

University College Dublin

George Moore Auditorium

O'Brien Science Centre

Belfield

Ireland

View Map

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